Woman with RS

Everyday something hurts, sometimes I can't name it or describe what/where it hurts.

There is a constant awareness of pain I always have. Sometimes its manageable but it is always there.

I am old enough to know what is missing from my life.

The absence of romantic relationship/intimacy is a real loss, most people don't think I want a romantic relationship because of my RS. They are wrong.

Being a woman with RS

... means pain, loneliness, invisibility, being ignored.

Most people don't/can't/won't learn to communicate with me.

My intellect is never assumed.

I am expected to smile.

Kids stop and stare. I can understand that. When adults stop and stare it is very frustrating. They don't think I see or understand: Stop staring at me.

I can't even imagine speaking on my own.

I want to be independent, no need for help with bathroom, eating, drinking, no facilitated communication.